Wednesday, April 13, 2011

Some thoughts...

I went to a mom's conference a few weeks ago for a time of encouragement. I had fun with my friends that came with me and God did teach me some things of the heart. However, one of the workshops I attended left me feeling so discouraged. It was a workshop for moms with special needs kids. It was to be a time of encouragement, but it wasn't. In fact, I was little put out. The lady that gave the workshop was a mom of a special needs kid and she talked about very practical things that we could as moms to help make life easier. For example, packing the child's backpack the night before school. Really? Come on. I'm not meaning to bash this lady. She had very good intentions, but I wanted more!! There was nothing spiritual in this talk at all, either! I left feeling like I just wasted an hour of my day and thinking that I could do a better job. Those other moms that were there needed encouraging.
So, I have been thinking a lot about this and what I would do if I lead a workshop for moms with special needs kids. This is just a rough draft and thoughts that need a lot more processing, but here it is:
1. I would talk about how God designed our kids with a purpose. Psalm 139: 13-14 says, "For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." What a wonderful thing for moms to know...that our kids were created by God. He knit them together and they are wonderfully made! God delighted in designing them!
2. God chose us as moms to be exactly what our kids need to help them grow and succeed. In Luke 1 an angel came Mary and told her that she was highly favored and that the Lord was with her. To be highly favored means that one is regarded with preferance and is privilged. I find great comfort in knowing that God prefered me over other women to be the mom for Andrew and that God is with me through every situation; good or bad.
3. We, as moms need to mourn the loss of dreams we have for our kid with special needs. I had big dreams for Andrew. I wanted him to have lots of friends, enjoy going on vacations, to play outside in the summer with the neighbors, to succeed in school. Andrew may do these things someday, but for now he doesn't. And, that's hard for me! I have on occasion written down these dreams and tucked them away. I hold on to them for him. And I also cry over them. I grieve for that loss right now. I think moms need ot know that this is OKAY! It's okay to want things for our kids and to dream big. But it's always okay to cry, be angry, hurt and mourn over those things that get lost because of the way our kids are.
4. Moms with special needs kids need support, whether that's through a church, friends, family or a support group. We can't do this alone. We need to vent and share what's going on in our kids' lives and in ours. Joni and Friends Family Retreats are a great way to find that support. These family camps are designed for the family as a whole and also allow time for moms to be in a small group to share our thoughts and feelings.
5. Parenting a child with special needs is not black and white. There is no right way to do something. We have to do what's right for our families. We absolutely can take someone's advice, but if it doesn't work, that's okay. We just keep trying until something does work.

These are just some of the thoughts that have been rattling around in my brain. I envision praying over of the moms, allowing them to share their story in a small group, sharing these things above and more. I want other moms to be encouraged and know that they are not alone in their journey.

Sunday, April 10, 2011

Sensitive

A lot of kids with autism tend to have some form of sensitivity. Some of Andrew's sensitivity is towards babies crying and music from a radio or CD. We went to Indy over spring break for a few days. While there, we went to the Children's Museum. Andrew likes to go to the same exhibits every time like the trains, the carousel and the science spectrum. Of course, these are the most popular with lots of people. He is just fine there, until he hears a baby cry. Then, he just stops what he's doing and puts his hands over his ears and tells me, "Baby happy!!". I try to distract him, but sometimes it is too much and he bursts into tears.
Andrew loves music...on his terms! Eric takes Andrew every Sunday morning to hear the worship band practice for the next service. Andrew loves it! He loves going to church to hear "the guitars". The worship team is great in letting Andrew run around and yell out "Rock on!" and "Rock Stars!" However, when we get to the van, I can not have the radio on. If it's on, Andrew will put his hands over his ears and yell, "Radio off!" And, if I'm not fast enough, it can turn into a complete meltdown of crying and kicking the seats.
I wish I knew why these two things bother him so much! It is one of many questions I would love to have an answer for. I would love for Andrew to be able to tell me why certain things are so hard. Maybe someday, but for now, I'll just to avoid those things. With a new cousin on the way at the end of summer, he may just have to learn to adjust, because I am definitely going to be holding that baby!

Wednesday, April 6, 2011

Andrew's Day

We try to put Andrew to bed around 8:00 every night. We do this because he is an early riser, like anywhere between 5:00 - 6:00 AM! There are some nights he doesn't actually fall asleep until 9:30pm because he's talking, or singing or tapping on the wall. That was last night. But, he was still up at 6:15am this morning! A lot of kids with austism have trouble sleeping. Andrew doesn't wake up at night, but he doesn't sleep long... at least for mom!

So, this morning, just like we always do, we took his "stuff" (blankets, bears, and Larry the Cucumber) to momma's bed and laid down for another 10 minutes or so. Then, we came downstairs and I made Andrew's breakfast. Every morning, he has the same breakfast - waffle and sausages. A blueberry frozen waffle and two saugage links. It never fails.

We had to leave the house around 8:00am to get Jarod to day camp, so that meant Andrew needed to get dressed. We got Andrew dressed and his flip flops. He loves his flip flops! It could be 20 below zero and he will ask to wear his flip flops! If it is that cold, I won't let him, but most of the time it's fine, like today. As soon as we got home, the clothes came off and the pajamas were back on! He loves his comfy clothes!

The rest of today has been filled with playing on the computer, playing with his trains and me trying to get him to interact with me. He will ask me for food or if he needs something, but pretty much resists if I try to initate "play". It's hard some days, but I'm happy with any kind of response from him! He did help me peel wallpaper (which he started in the first place and is why we now have a big project inthe Hansen house!)when I asked, so it's been a good day!

I'm off to get him some ham...his favorite snack.

Monday, April 4, 2011

April is autism awareness month!

I am hoping that I can shed a little light into the world of autism by sharing our life this month.
Andrew loves Wheel of Fortune! He loves to play it on the computer and "play" it on the kitchen table. He has several puzzles memorized and will randomly quote one throughout the day like "highly recommended walking tour". Then he will joke with us by saying the wrong word or change the name of the person playing. he will just giggle and giggle!
Wheel of Fortune is colorful and repetitive. I think that's one reason why Andrew loves it! He also loves the spinning of the wheel.
it's a great way for Andrew and me to play together, which is difficult for him.
So, yay for Wheel of Fortune!

Friday, July 30, 2010

Friday's 5

1. Jarod played Wildcat Baseball this summer for the first time. He enjoyed for the most part. There were some tears the last day from hurt feelings (and mama too), but I'm thankful that Jarod still wants to play again next summer. I'm also thankful for the opportunity to talk with Jarod about character through the hard times.

2. Andrew has finsihed with summer school. I am thankful for great aides and teachers that were with him this month. This was his last summer for this specific program. My boy is growing up!

3. Today, we had nothing on the calendar! The boys and I stayed in our pajamas until about 10am, then went to the library and the grocery store. After lunch, we went to Huntington to visit with Grandma and Granpa Hansen. It was a great day! I'm thankful that we could do all of those things without having to race back home for the next "event" on the calendar!

4. I am thankful for some "cooler" weather. It hasn't been so humid and sticky and I am very thankful for that!

5. I'm so thankful for a husband who brought home dinner tonight so I didn't have to cook.

Sunday, July 25, 2010

my 5 on Sunday

1. I am thankful for a successful garage sale and that it is over. We sold a lot of things and then took the rest to Goodwill. I have never done a garage sale before. It was a lot of work. But, I'm glad I did it. I'm not sure I wlll do it again, though.

2. I am thankful we had the privalege of a good eye doctor for almost 10 years. Dr. Dykstra passed away a few weeks ago. He was patient with both my boys, but especially with Andrew. He also had a son named Andrew and so I think he was fond of my Andrew. Dr. Dykstra will be missed by our family. Now, we need to find anotehr dr. I know God will lead us to the right one.

3. Eric and Jarod were at Scout Camp this last week. Jarod came home a night early because of storms. I am thankful for the neighbor who graciously brought Jarod home. They all had a great time.

4. I'm thankful for wonderful worship this morning at church.

5. I'm thankful for an opportuntiy to do a little babysitting this school year. All the details still need to be worked out, but I'm excited!

Friday, July 16, 2010

Five on Friday

1. I am thankful for a wonderful visit with my roommate from college. We had a great time laughing and shopping. I wish we lived closer!
2. I am thankful that we found a gluten free pizza crust that Drew will eat. We started him on the gluten free diet to see if it would help his attention, especially with starting first grade! Pizza is his favorite and I hated to take that away. Thanks to Whole Foods in Indy, we found some crust that is actually pretty tasty!
3. I had a great time last night catching up with a friend who is going through a lot of transitions in her life. I'm so thankful for her friendship!
4. Andrew is talking more and more to us, not just random thoughts. The other day we went to Meijer on Lima rd. He saw Burger King and wanted to go. I said no at first and then Andrew said, "Meijer first, then Burger King." How can a mom say no to that!
5. Andrew is doing pretty well in summer school. It really helps him when school starts in a few short weeks. I'm thankful for the teachers and aides that are there working with him!